Monday, October 10, 2011

Saying Goodbye

9 October 2011

Dear Dad,

Well mate, we scattered your ashes.

It was a beautiful Day, clear and calm, and unusually warm

Mum, the Harrisons, the Newths, Paula, Andy and Sam came up to scatter your ashes on the front block. We originally planned to scatter you up by the first gate, but we were thwarted by too much grass on the top track. Can you Believe that? TOO MUCH GRASS! You've never seen anything like it.

So once it became apparent we weren't getting any further up the hill we quickly concoted a plan B, and found a suitably monumental stone to scatter your ashes near, and plant the Grandma Roberts Rose Jenny carefully selected out of the garden.

Anyway, pictures speak a thousand words:

 The View

 Your Rock

Paula, Mum, Sam, Case and Jen getting to the spot 

Mike and Lucy in front of your rock

 Your Rose

 Mike, Case, Mum and Sam digging the hole for your Briar Rose

Case, Jen, Andy, Sam, Mum and Paula observing the digging

Mike,  Cam, Jae and Mike

The boys  

 Look at the grass! Unbelievable!

We buried about half of the ashes under the Rose

And put flowers around the base of it (Case and Lucy) 





You'd like it up there, it's a good spot.

And the rock can be seen from almost anywhere on the property - perfect.

Love you Dad

Cath xoxox

Thursday, October 6, 2011

Happy Birthday

6 October 2011

Dear Dad,

Well mate, the god awful year of 'firsts' just keeps rolling.

Today would have been your 65th birthday, you would have been eligible to retire this year, and you were going to get tickets to go to Elton John with Mum in the new Stadium for your birthday. But instead you're never going to enjoy a single day of retirement, and Me and Jenny are going with Mum instead.

I really missed you today Dad.

I really miss you full stop.

We had an incident on Wednesday night where the wrong fuel type ended up in the wrong vehicle, and the first thing I thought was 'God I need to ring Dad and ask about this!'

But it's OK, we sorted it - even if you're not here to bail me out of any mechanical misadventures you at least bred enough confidence into me to stay calm in a situation and sort it out. So thanks.

I just miss you Dad.

I really bloody miss you.

Happy Birthday.

Love Cath
xoxox

Monday, September 5, 2011

Fathers Day

4 September 2011

Dear Dad,

HAPPY FATHERS DAY!

It's been a tough one, I know we never really used to 'do' Fathers Day, but it was still very strange buying Fathers Day cards for Mike and not grabbing one for you.

I miss you heaps Dad.

You've left one hell of a hole.

The kids are getting big now, Lucy's crawling (at speed!) and she's finally grown some hair! You'd love her, she's so cheeky, she's always got a perma-grin on her face, she's a very happy, contented little girl, she's the polar opposite of how serious Captain Grim was at the same age.

Cam's such a dude, I'm not sure of you'd have been proud or mortified at the way he was 'helping' yesterday when Mike changed the oil on the Toyota (Probably mortified!) but no damage was done, and like you always said - how else is he going to learn?

You'd be proud of Mike too - he's come a long way from when you met him, he did a complete service on the car yesterday, no hassles, no fuss, no frustration, you taught him well - not to mention you gave him the confidence to have a crack at these things by himself.

And I've been accepted into my Degree! Yay! I'm so relieved, I was having kittens about 'What if I don't get in?? Would I have wasted a whole year?' but now I can just sit back and keep working hard at my certificate without having to second guess myself. So in 3 1/2 more years I'm gonna be a real live Occupational Therapist! I know it's not the nursing degree I originally planned, but I think it fits me better. I really think I'm going to enjoy the next 3 years - exciting things are coming my way.

I wish you were here to see all these things, it's really strange moving on with our lives.

I took this photo today:

Springs here!

I miss you heaps Dad. I just hope that where ever you are, and what ever you're doing you know you're loved, you're missed and I hope to see you on the other side one day (not too soon though, k?)

Love you Dad
Cath
xoxoxxo

Wednesday, June 29, 2011

I'll keep you in my heart

29 June 2011

Dear Dad,

I found this on my internet ramblings today, and I thought of you:


I loved the way you used to read Winnie to Pooh to us.

I'm going to read all the stories to my kids too. What an awesome legacy you left - the love of reading.

I miss you Dad.

Cath
xoxoxo

Tuesday, June 14, 2011

Sweet Dreams

14 June 2011

Dear Dad,

I keep dreaming about you.

I was initially upset (yup - I know it sounds dumb) that the last dream I had about you was the one interrupted by Mike to tell me you'd died, but no, you're back in my dreams with a vengeance, and it's really comforting.

They've been weird and varied, and one was out and out frustrating, but I always wake up feeling pleased that you'd found a way to 'visit' me in my dreams. And in my dreams there's always a part of me that says 'Dad's dead, this is you last chance to see him, make the most of it!' so I do.

And with the way dreams are (nonsensical and random) I've actually enjoyed having one more opportunity to give you a cuddle and tell you I love you, things that would have been awkward or too heartbreaking if they'd happened in real life.

The best bit? Dream you is always you,  not sick you, not thin you, not out of puff you, the you I knew and loved and enjoyed hanging out with for so many good years.

So while I'm not sure if these are just random electrical signals from my sleeping sub conscious, of if they're real other worldly visitation of the ghostly kind, but I'll take them.

Thank you.

I love you Dad

xoxox

Saturday, June 4, 2011

A picture says a thousand words (or add your own cliche here)

This was taken by the beautiful Angela at Dad's funeral (Beautiful inside AND out).

Jen found it and emailed it to me.

I'm not sure what to do with this, but it's too nice to throw out but not really something for the photo album either.... so I'll post it here.

This is me reading at Dad's funeral, Mike by my side and Cam looking suitable lost. Lucy was on Paula's lap.

I must have done a good job with my makeup, because you can hardly tell I'd been bawling non-stop up until that moment.


Best moment of the whole funeral?

We were walking into the hall, looking sad and with people staring at us, when Case yells out 'Why is Mike a policeman all of a sudden!?'

Turns out Case thought Mike should be wearing his level 2 kit rather than his dress uniform, just to stop any confusion about what Mike does for a living.

Gotta love a 4 year old's thought processes.

Tuesday, May 31, 2011

My New Normal

31 May 2011

Dear Dad,

Well mate, it's pretty much over. I've finally taken down the sympathy cards, and I've thrown out the dried and wilted flowers that beloved friends sent in those awful blurry days after you died. The thank you cards are written out, your precious things have been packed away and you've been reduced from beloved Grandad to photo on the wall.

And it hurts so much.

And I don't think I'll ever get over this.

And I don't think I'll ever stop missing you.

It's so hard trying to make memories of you for the kids when they're still so small, you know what I mean?? Cam associates you with cups of tea, and tell me he misses you. I really hope that he was old enough to form some real and concrete memories of you.  I have your watch. I'm going to get it a new strap and pass it on to Cam for his 21st, when he's old enough to really appreciate it. I have 'House at Pooh Corner' for Lucy's 21st, how many kid will have a genuine 1946 edition AA Milne in their library's? I'll make sure she looks after it.

I've started reading to these kids, just like you did for us, and they LOVE it. I wish I'd started it earlier.

I spent the weekend out at your place, and while I love spending time with Mum you left a bloody big gap when you left. The house just isn't the same. Nothings the same, and I guess it won't ever be again.

Mum's doing really well Dad, she misses you like hell, but in her usual stoic way she's just getting stuck in and doing what needs to be done, and doing it well. I'm proud of her. I worry about her too, I'm trying to get over home as much as I can. I guess I should have got there more while you were still there.

I thank God everyday for the time we did spend together though.

And Jenny - Wow Dad, she's mind blowing. She's like freaken McLeod's Daughter and has taken on irrigator moving, stock moving, bull sale attending, the whole bit. I couldn't hold a candle to her, she's been amazing. I'm so proud of her. I really hope that when the time comes and the estate gets settled that she's the one in the position to buy the place, she deserves it. I just wish I could be more help.

I was replaying our last conversation the other day, it seemed fitting that our last interaction was via telephone, considering so much of our relationship for the last ten years was conducted via phone. You know Dad, I distinctly remember getting off the phone and looking at the counter - 6 minutes 33 seconds, and I remember thinking 'Wow that's probably the shortest phone call I ever had from Dad'.

I also remember asking you how you were feeling, and you told me you were 'about buggered'.

I guess you were right.

I wish I'd said something more meaningful to you before I hung up.

I wish I told you I'd love you forever.

But you knew that anyway, right??

I'll love you forever Dad.

Cath
xoxox

Monday, May 16, 2011

Saying Goodbye

16 May 2011

Dear Dad,

Well mate, it's been a month.

It's been a month since we fare welled you in the Patearoa Hall, with your mates and your family gathered to smile and remember you.

The Hall was full Dad, you would have been stoked to see so many people there, and I just know you'd have been keen to catch up for a yarn with each and every one of them. There were people you'd never met or hadn't seen for years there too, all there to show there support when we really needed them, and we'll love those people forever.

I think the viewing us girls did the morning before the funeral was one of the hardest things I've ever had to do. I'm glad I did it though, it made if real, actually seeing you there in that box. But it wasn't you either? Do you know what I mean? The person in the box was too thin, too pale, too cold, too still. Just your shell. You were long gone. What made you YOU had already gone off to bigger and better things. The funeral director gave Mum a gold trinket, that had been broken in half, one half to go with you, one half to stay with her. It was a beautiful token. I patted your hair and said goodbye, and we cried. Me, Jen, Paula, Mum and Case.

You funeral was at 1:30, it was a grey day, but not wet. I had been thinking it, and Jen had said it out loud:
'The sun, for sorrow, will not show it's head'

We played Slim Dusty for you Dad, a song picked by Mum as we walked in, 'Walk a country Mile' for the reflection and 'Leave him in the Longyard' as you were carried out. It was fitting.

Jen, Mike, Tim and I spoke, you would have loved Tim's story about you losing a spring off the bailer, how you'd told him days later you thought the spring must still be in orbit. He wondered if you've found it now.

Mike, Mike, Paula, Tim, Stu and Fraser carried you out. Andy stood with us, too distraught to talk.

And then you were gone.

We drank coffee and talked with your friends in the Patearoa bowling club, and when it was over, it was over. And we went home, exhausted and drained and cried out.

A fitting tribute for one hell of a good man.

I love you Dad, and I miss you.
I think you would have liked your funeral, I think we saw you off well.
Love Cath
xoxo

Monday, April 18, 2011

The Dash

18 April 2011

Dear Dad,

I'm not quite ready to blog about your funeral yet... I'm still ticking it all over in my mind. I will say this though. - It was beautiful.

I will however post the reading's Jenny and I did. I was really proud of the way we managed to get up there in front of your friends and workmates and speak from the heart.

The Dash  (Read by me <3)
I read of a Man who stood to speak
At the funeral of a friend
He referred to the dates on his tombstone
From the beginning to the end
He noted that first came the date of his birth
And spoke the following date with tears,
But he said what mattered most of all
Was the dash between those years

For that dash represents all the time
That he spent alive on earth.
And now only those who loved him
Know what that little line is worth.
For it matters not how much we own;
The cars, the house, the cash,
What matters is how we live and love
And how we spend our dash.

So think about this long and hard.
Are there things you’d like to change?
For you never know how much time is left,
That can still be rearranged.
If we could just slow down enough
To consider what’s true and real
And always try to understand
The way other people feel.

And be less quick to anger,
And show appreciation more
And love the people in our lives
Like we’ve never loved before.
If we treat each other with respect,
And more often wear a smile
Remembering that this special dash
Might only last a little while.
So, when your eulogy is being read
With your life’s actions to rehash
Would you be proud of the things they say
About how you spent your dash?

The Autumn Muster (read by Jen <3)

In the cool air of the morning,
As the bright stars fade away,
Comes an echoing down from shingle tops
The first ‘bark up’ of the day.
As the Dogs take up there chorus
The sheep will soon be strung,
Far across the snow grass basins high
And the muster has begun.

A stag roars from the bush below
Challenging far and near.
His hinds are milling in a mob
Keeping a well tuned ear.
The tussock waves in the nor-west breeze
A kea screams above,
And the rattling noise as a chamois bolts
Are the sounds a musterer loves.

The frost is on the dark side face
The creek is icy cold,
And sidling through a ragged bluff
A man’s step must be bold.
There’s boulders flying down the hill
As the wethers pick their way,
Through the mass of rocks and ridges
Where the men do earn their pay.

The poor Dogs trail behind them
Their pads are bleeding raw,
Fighting fit three days ago
They now are tired and sore.
Most will run until they drop
Courage great to see;
And when the homesteads yards are reached
A well earned rest there’ll be.


I hope we did you proud
Love me <3

Friday, April 15, 2011

Memories

Dead Dad,

I guess in all our lives there's a time where we worry we aren't liked, that we don't have many friends, or that we won't be remembered. I'm not sure if these thoughts have ever plagued you, but they sure have me, and because of this I'd like you to know that you were like and loved by so many people, even people you'd only met once or twice. My facebook wall over the last couple of days have been a testament to that, and I'm guessing that people have to got to know you a little bit through this blog too. I've screen cap'd so many kind messages from beautiful friends, and when she's ready, I'll print them for mum to keep. It's the 21st century way of sending a card I guess.

I just wanted you to know Dad.

You were loved my many, and you will be sorely missed.

I love you Dad xoxoxo

Thursday, April 14, 2011

My Dad

My Dad was a tall, handsome man, with broad shoulders, a ready smile and bright blue eyes. He had distinctive 'dunny brush' hair that was very coarse and stood pretty much vertical. He was a real mate, and very rarely said anything ill of anyone. He laughed and loved and while he was certainly never rich, I don't think he ever really wanted for anything. I'm sure other than dying early that Dad would have no regrets from the way he lived his life. He was a very special, salt of the earth person who will be sorely missed
(And most of these pictures don't do him justice)

 















Rest Easy Dad
6 October 1946 - 12 April 2011

Wednesday, April 13, 2011

The Details

For those of you who can make it, Dad's funeral will be this Saturday (the 16th of April), 1:30 at the Patearoa hall, with Afternoon tea to be served afterwards at the Patearoa Bowling club.

In Lieu of flowers Mum would like a donation made to St John, they really did a stellar job when they we called out on Tuesday morning. They went above and beyond and their professionalism, care and comfort the provided on one of the worst mornings of our lives will never be forgotten.

If you'd like to send a card or message to Mum her address is:

Cheryl Macdonald
238 Hamiltons Road
RD4
Ranfurly 9430

Thank you all for your love and support during this tough time, we really appreciate it

Love Cath

And then you were gone

12 April 2011


Dear dad
well hun, its over. I was having a precious sleep in (I was actually having a crazy dream about you) when mike woke me and told me that Jen had called. Mum found you this morning, dead on the laundry floor.
Its not clear how long you'd been there, Verne thinks perhaps a couple of hours, and it appears you had some sort of massive hemorrhage and passed away quietly and quickly. Perhaps you never even realised what was happening? I hope not, I hope you weren't frightened. It certainly looks like it took you quickly anyway.
I didn't cry when I heard the news Dad. I'm not sure why. Shock? was I already so prepared that it didn't surprise me? I don't know, but I was able to organise two kids and pack bags and get into the car without crying.
I fed the dog, fed the guinea pigs, text a couple of people to explain my absence from the days plans without crying. I got in the car and got gas, without crying.
And then I rang the polytech to ask to be excused from class.
and I had to tell them: My Dad died this morning.
And I cried.
I cried and cried, silent and unglamourous for most of the drive home.
God Dad it's just so unfair. We weren't ready, not yet, not like this, not so soon. We never really got a proper goodbye did we? one last cuddle, one last I love you, one last see you later. I was just too soon.
And I tell myself, and I tell anyone who I talk to - it's for the best, he was so sick, it was so awful to watch, but I still wasn't ready.
And it breaks my heart that mum and Jen saw you like that,hunched  and dead on the floor.
So the day was spent crying, and planning. The news slowly leaking out, people coming to the house to cry with us, to drink tea and offer condolences. The funeral director came and arrangements were made, and we all sat there on autopilot as we picked songs and sifted through photo's.
It's just surreal Dad. You're gone. You're actually gone. There'll be no more conversations about the dogs, about the air force, about something you saw on TV. There'll be no more listening to me let off steam. There'll be no more of anything. It's over. You've actually gone.
And you'll be gone forever.
And I'll miss you forever.
And Lucy and Cam will never know for themselves what a great person you actually were.
and I don't know what I'm going to do with out you.
I love you Dad.
Rest Easy.

Sunday, April 3, 2011

Fading Away

3 April 2011

Dear Dad,

Wow I'm just gonna come out and say it - You looked SHOCKING when I saw you yesterday.

Even though it's only ten days since we dropped off the dog you've dropped SO much weight and you look SO tired and your eyes are SO yellow.

What a bastard this awful disease is.

And you had bad news at your last chemo session too - the bloody tumor in your liver is getting bigger and bigger instead of shrinking as promised, so you're off for another scan one day soon. It was frightening to see you so out of breath because your liver's swollen to the extent where you can't get a lungful. It's horrifying Dad. It's scaring the living shit out of me. I just can't see how we can hope for another two years when you  already look as sick as you do.

It's not fair.

It's just not fair.

And while all I really want to do it sit and cry and feel sorry for myself we have the really awful things to get out of the way first. Things like handing over your signing rights. Getting someone in as power of attorney. Looking through the books, talking to the bank manager, sorting out the partnership with Andy. All these awful morose tasks that feel so wrong to be doing to someone who's still alive and still very much mentally capable. But things that have to be done.

Jenny's being a superstar organising this stuff Dad, she's taking the brunt of the hit so the rest of us don't have to think about it. And she's told me she feels like a sneaky bank handed back stabber, but I'm so glad that someones  doing it, and I'm glad that it's her, one of us, rather than some sneaky lawyer or someone out to help themselves.

So after talking behind your back with Jenny for almost an hour about how the pie's going to be distributed after you go, I helped you put the lawnmower back together yesterday Dad. And we declared once it was done that she'll be fine for a couple of years yet. A couple of years where I guess either mum or us girls are going to have to learn how to drive it.  And yep - I felt sick too, having been mentally preparing myself for what's going to happen when you go, then helping you reassemble the mower for more years of happy mowing. A fucking lawnmower has a greater life expectancy than my Dad.

But we won't think like that, will we? We'll just enjoy having had an afternoon in the sun working together side by side like we used to.

I'm really going to miss things like that Dad,

I Love You
Cath xoxox

Saturday, March 12, 2011

You and Your Girl

Dear Dad,

I just wanted to share this:

Everyone always tells me 'Wow! She's got her Mummy's eyes!' but nope... this proves it - the blue's yours



And Jen's boys have them too.

Good genes you got there.

Love you Dad xoxo

Thursday, March 10, 2011

Short changed on my Long term goals

10 March 2011

Dear Dad,

It was great to catch you yesterday afternoon. To be honest I completely forgotten that you had chemo yesterday, hence the state of the house when you and Mum arrived.... yeah Toddlers are great like that...

Anyway, it was good to catch up for a coffee. You were, as always, happy and chatting and keen to catch up, especially with Mike on Earthquake recovery up in Chch, I had all the juicy behind the scene's gossip for you.

And it's great you're feeling so good and doing so well, you're being amazingly strong.

But.

I thought you were looking yellow.

REALLY yellow.

You probably don't notice it so much in yourself because you look at yourself every day, but in the week or so since we last caught up I though it was really noticeable.

It's Cam's birthday tomorrow, so when we catch up over the weekend for his Cake I'm going to take a whole lot of photo's of you with the kids, before you start to look even worse. It makes me sick to think like that, but I guess I have to be realistic too.... you've NOT going to go back to looking like you used to. Not without some sort of miracle (one we're all praying for...) I need to start taking photo's NOW. I've got a couple of you and Cam from when you were in hospital, but I need more, I need then taken at home and I need them while you're not looking that sick. I especially need them while you're not feeling sick.

God I wish I didn't even have to think about these things.

God I wish every time I saw you I didn't have to think 'Wow, this is as good as Dad's EVER going to look from now on.

At tech last week we had to set some 'long term goals', 5+ years, and throughout the class they generally all included graduating with our bachelors. And of course it lead to the usual 'Wow my daughter will be FIVE by then! it seems so unreal!' and all I could think was

'My Dad's not going to see me graduate'

And I cried on the drive home.

I hate this disease Dad, I really fucking hate it.

I love you, see you on Saturday

xoxo

Saturday, March 5, 2011

Lost in the Translation

5 March 2011

Dear Dad,

So it's been a couple of weeks but we finally managed to catch up last weekend.

And Wow. You've lost a lot of weight huh? I was stunned to be honest. I guess it was to be expected but wow, I hadn't expected it so quickly.

Otherwise you're doing OK - you haven't been spewing, you haven't lost any of your hair, and you don't REALLY look sick yet. The big bruises on your arms were probably the only thing that made me think 'wow, that guy's sick' rather than 'Wow, Dave's lost weight'

You're doing really well with your chemo, keep it up! It's the best chance you have!

And when we caught up on Thursday you said Dr Perez was really positive too, you're liver's going down, and you're able to eat more, which is fantastic.

But to be honest, I'm concerned about the massive difference between what the Doctor's telling you, and what you're actually hearing.  I thought for a start you were being wildly optimistic and positive, but I spoke with Jenny about it today and her version of what you've been telling people concurs with mine.

You seem to think that it's going to take two years for the treatment to beat the cancer, that they're not doing anything about the lymphoma yet because they're going to wait until the main tumors have been destroyed.

Dad that's not what they told you.

He said 'the average life expectancy for this cancer is about two years. The drugs we've got you on will shrink the tumours, but they'll never eradicate them unfortunately. We're not going to bother treating for the lymphoma because lymphoma is slow growing'

In other words - this is terminal. There's no point in treating the lymphoma, because the the dirty mongrel tumour will kill you first.

God I don't know what to do. Are you just being optimistic? or have you honestly been bamboozled with medical speak? It breaks my heart to hear you talking about recovery. It terrifies me to think of the awful awful shock you're going to get when the tumors stop shrinking and we start talking about hospice and palliative care. The awful shock you're going to get when the rest of us understood and have known all along.

And whose job is it to tell you? Ask you what you actually understand?

Shit I think I need to talk to Doctor Perez.

Love you Dad
xoxox

Saturday, February 26, 2011

Why I'm doing this

SO - I thought now that this is 'out there' and people who know me, my Dad and my family have seen it I thought I'd better explain why I'm doing this.

I want to be able to express, vent and process how I'm feeling in a non confrontational, neutral way. You have the choice to either read this or back away; you haven't been cornered in an awkward conversation with a daughter grieving for a man who's still alive. As you can probably imagine, it's very very hard when your hero is desperately ill, and it's very easy to get to the point where you find that ALL you're talking about and thinking about is Cancer. It's a bastard. It becomes all consuming, and before you know it you're 'that chick who's Dad has cancer' or, as I recently discovered 'that chick who just wah's on and on about her Dad...' (I'm sorry you felt that way, you know who you are, and yes, there's a reason you can no longer find me on facebook.....)

I have some very very beautiful friends (Emma, Kate, Liz, Liane, Raylene, Dee.. oh god I hope I haven't missed anyone.....) who've LET me bleat on, and I love you for it.

And everyone else who's offered words of love and support, I love you for it too.

It's therapeutic for me to write this down, it saves the tears or well practiced calmness in front of the kids  or anything else that I present face to face, it's raw and real, and it's what I'm living in the now.

So because of this some of what I write IS going to be selfish, or blunt, or ridiculously full of self pity, or it might be upsetting, or it might dredge up some miserable things for those reading it, and I'm truly sorry if it does. Please remember that this is a place I'm using to vent raw emotion, and if you're offended, I really am sorry.

I also want to do this because I want to remember the journey of Dad's illness. I've found myself reaching out to people who've been in this very situation, and I've found they seem to only concentrate on the end. I'm not sure why this is, and I'm frightened of what I'll be like when it happens to me, but I hope I can look back on this blog one day and have my Dad's whole journey right here in black and white. Every crying fit, every triumph, every little detail. So that later on, maybe it'll take years, I can look back on this and perhaps get some sort of comfort. Or maybe it's just a good place to store all those little things you take for granted everyday, but become precious memories in  the future.

So if you're reading this, thank you for giving me an outlet, for those who've offered your support, I love you for it, and to anyone else out there in the big wide world who may have stumbled across this while you're on your own journey, I hope can provide some sort of comfort that you're not the only person feeling like you are.

Mum, Jen, Cam, Lucy and Mike - I love you all, It's a bastard of a journey we're on but I couldn't wish for better people to go through this with.

And of course: I love you Dad

xoxo

Wednesday, February 16, 2011

Your new 'Normal'

16 February 2011

Dear Dad,

Well today was the day! After having half a litre of potentially life threatening/life saving chemical's pumped into you yesterday they've decided you coped well enough to be discharged today.

I was going to come in today and see you anyway, Jenny Haaima has given me a stack of last weeks magazines from the shop to keep you occupied when you're not feeling well enough to get out and about. It was awful telling her you're now terminal Dad - she cried. She's had too much heartbreak in the last couple of months and I think it was overwhelming to hear that you're so sick too. I feel like I'm talking about someone else when I tell people about you Dad. I suppose I look suitably sad, but it still doesn't feel all that real. It feels like I'm passing on gossip about someone elses sick Dad, not mine.

You sounded happy and keen to get home when you rang this morning, and you were pleased to report that the chemo had had very little effect on you. We initially planned for me to pick you up after tech but I managed to get Mum on the cellphone and she decided the hell with the A and P show, she'd go and collect you herself.

I had a two hour break between afternoon classes, so I filled my time by wandering down to the hospital in the sun to spend some time with you before you were discharged. I ran into Mum while I was getting a coffee and we sat in your room and chatted while you were finishing up with the Doctor. She looks very tired, but she looked much happier than when I last saw her on Saturday, She'll be pleased to get you home.

You actually looked much better today, it might be that you're out of bed and back into your own clothes, it might have been that you were escaping the hospital but you definitely looked perkier than when I saw you on Monday.

You've lost a fair bit of weight in the last 3 weeks though, and the bruises on your arms where they've been putting in IV's is fairly disturbing, but it's a small price to pay for having your life expectancy lengthened isn't it?

So you've been sent home with a 21 day cycle of chemo. IV drugs, then 2 weeks of pills, then a one week break from treatment. This will go on for about 5 months apparently. Pills and IV's and anti nausea drugs and pain relief and pills so potent you're not to let anyone touch them because while they can (and hopefully will) shrink your tumours they can CAUSE cancer should a cherubic but un assuming grandson grab one and gulp it down. This is going to be you from now on.

This is your new Normal.

This is going to be your life.

It's a bastard but we'll take it for a few more precious months right?

I love you Dad

Monday, February 14, 2011

Re-admission

14 February 2011

Hi Dad,

Well you're back in hospital. Looks like you're gonna be spending a lot of time in there huh.

Sounds like you had a productive 24 hours at home. You were typical you - fixing things. I was so sorry you had to go home and shoot your old heading dog Gus. I should have done it for you, but I didn't have time to get out home to sort it out before you did. At least there's no more pain for him now.

I caught up with you today between classes. It was my first day of Tech today, and I'm surprised at the low work load they put on while I'm actually there, but are keen to put 35+ hours worth of work for me while I'm at home.... I guess I'll find a way to get my 'home' work done between classes. But for today it was a nice chance to walk up to the hospital in the sun and sit with you for an hour.

You looked 'puffy' today. I'm not sure what in particular was swollen, you just definitely looked puffy around the midsection. It must be where you liver's blown up. You still look good considering though, a wee bit tired but still happy to chat and joke with me.

I really liked the plan your making to be around for Lucy's first day of school. A five year plan for a man who's been given two.  Your courage and determination in fighting this is mind blowing Dad, I really am very very proud of you.

Who knows, Lucy's first day of school is still 5 years away, and god only knows what amazing medical advances could be made by then.

You sounded really positive today Dad, you have no idea how comforting it is when I'm still struggling to come to grips with the fact that you're terminally ill. Your call at tea time to say they'd finally finished the relentless testing and were going to kick off the chemo tomorrow was good to hear too. The sooner they start hitting the bastard the better, the faster they start chemo the faster they can start shrinking those tumours, it can only be a good thing if it's going to buy us all some more time together.

Time has never been so precious

Love you  heaps Dad, we'll talk soon xoxo

Saturday, February 12, 2011

Two Years

12 February 2011

Dear Dad,

Well we had the meeting today.

We met Dr Perez, who of course is lovely, but he'd have to have a lovely personality to do the job he does. You generally don't get arseholes in the oncology ward I'm discovering. I guess people who have to dish out the worst possible news and work with people at their absolute sickest have to be special people don't they.

So he told us that while it has yet to be confirmed, they're sure it's bowel cancer. Bowel cancer that's spread up into your liver. And you have lymphoma cooking away in the back ground. They're going to do one last test on Monday (some kids of scope - I can't remember the word he said) to confirm the type of bowel cancer.

The spots on your liver are large, and appear to have been there for some time.

And you're not going to beat this.

This is what's going to kill you.

And it's going to kill you relatively quickly. Within 2 years.

Two years.

It's not long enough is it??

Not when you're still so young and the grand kids are still so little.

Two years to make enough memories for a lifetime for these little kids, to make sure they remember their grandad.

It's not all bad news though - they CAN and ARE going to attempt Chemo, and while there's no way to cure this awful disease they're confident they can shrink the tumors to the point where you'll have a good quality of life for the time you have left.

Now don't get me wrong, I'm eternally grateful we have the chance to prepare, no MAKE memories, it's the chance so many people don't get, but that doesn't mean it doesn't feel like my hearts been ripped out and stomped on.

Two Years. The Countdown's started.

So tonight you're at home, with Mum for a short break before they bring you back into hospital tomorrow night. Monday is more testing, then god knows what happens after then.

Two Years. It's not enough.

Friday, February 11, 2011

Devastation

11 February 2011

Dear Dad,

Well we really got the rug pulled out from under us today didn't we.

Jen called me at about 3pm, just as I was heading out the door to my meeting, with the worst possible news. Your liver biopsy was back - It IS Liver Cancer.

and the arse fell out of my world.

Turns out you had Liver cancer all along. But here's the kicker - the lymph node biopsy came back as lymphoma because you have lymphoma too. And as Liver cancer is almost always a secondary cancer the prime suspect it Bowel Cancer. Triple threat. 3 Cancers at once.

She was in tears. I was in shock. How the hell can this be happening?! you STILL don't look sick! not THAT sick! Not three cancers at once sick!

What really upsets me is that you were by yourself when you were given the news, after being given the option for the hospital to contact us to come in you chose not to because you didn't want to be any hassle. And then after being told you weren't going to survive this awful disease you tried to call us for an hour an a half before you managed to get Jenny on the phone. I'm so sorry Dad. I'm sorry you were alone when you heard, and I'm sorry none of us had a phone handy when you were trying to contact us. I wish to god I was there Dad, it's not fair you were on your own.

SO I came straight in to see you, you were just you. Not upset, not distressed. You apologised for the stress. APOLOGISED! Dad you don't have to apologise for anything. You've never been anything but a fantastic father, and we've been blessed to have you in our lives, blessed to have been lucky enough to have YOU for our Dad. Apparently between the phone call and me arriving though your oncologist had been in and talked about Chemo therapy, so they haven't written you off with a short term death sentence yet. But Fuck Dad, I can't see you beating this. Not now it's everywhere.

So tomorrow we're gathering as a family for that meeting with your oncologist. You're calmly optimistic. I'm terrified Dad. Terrified.

I want to crawl under a rock and cry.

I love you Dad.

Thursday, February 10, 2011

Testing Testing

10 February 2011

Dear Dad,

Well you're still stuck in hospital. I didn't get in to see you today, I knew you had a lot of things going on and would probably need a rest thanks to all the drugs they've no doubt hooked you up with.

It was good to hear from you this morning, who knew you'd get so proficient with a cell phone so quickly after YEARS of cursing them! I was disappointed for you to hear that after 12 hours Nil By Mouth your surgery to get your lymph nodes taken out was bumped. You need to get pushier though, it's one thing to have your surgery bumped, it's another thing entirely to be left thirsty when no one tells you the surgery isn't happening. I'm glad you eventually spoke up and they got you a saline drip, I bet you felt much better after that.

So today they took the biopsy out of your liver, and you're booked in yet again to get the lymph nodes out, hopefully tomorrow.

I wonder if they know what exactly is going on yet? What type of lymphoma it is? I suppose it doesn't really matter does it, as long as you're getting the right treatment.

Speaking of treatment, sounds like Monday's going to be the day! Wow! I can't believe it's only been 2 weeks since you were diagnosed and they've already got the chemo ready. So  it doesn't look like you're going to get out of hospital any time in the near future does it? You're in the best place though Dad, there's no point in being at home feeling like shit when you can be in hospital being looked after properly.

I rang Mum this morning after you rang me, she sounds stressed out and frazzled. She also sounded relieved that you seem to be in such good spirits. She's doing her usual Mum thing and throwing herself into anything and everything to let off some steam. Don't worry, I've got Jen looking after her. And like I told you, I'm only 40 minutes away of you need supplies or need to be picked up should you manage a short hospital escape or even if you just get lonely, that way there's not the pressure on her for the 4 hour round trip, and when she comes to see you it'll be more relaxed, less like she's running around doing errands.

I'm in town tomorrow, so I'll be in to visit and drop off some reading material. Shit you must be getting bored. I'm in town all next week anyway, we can do lunch!

Rest up Dad, it's another big day tomorrow. Hopefully you'll have some results from all this testing soon

Love you heaps
Cath xox

Hospital

9 February 2011

Dear Dad,

Well we missed each other this morning, you had to be in at 8, so there was no time for a coffee in Palmerston today.

I gotta say, I admire your dedication and diligence for getting to appointments and tests, it's shows me and the people looking after you that you're serious about getting better.

We caught up after I'd been and done the groceries, and Mike had taken Cam to the fire station so I didn't have to worry about him galloping around the hospital while I was trying to talk to you.

I was initially shocked with how exhausted you looked, but it all made sense once you told me you'd been sedated for the bone marrow biopsy.  Actually is amazing how SICK someone can look when they're in an oncology ward with a lure in the back of their hand and a hospital bracelet on. Then again, you should have seen some of the other in patients.... by comparison you're still looking decidedly chipper!

You are looking quite swollen around the face though... it must be your lymph nodes, and seeing you in bed with Pajama's on made how swollen you liver is obvious too. You're obviously in the right place, because while you look a long way off dying there's something not right.

So by the time I saw you you'd had the bone marrow biopsy, and were due to have the CT scan at 4pm. I was lucky enough to be there when as the doctor did her rounds. They're still obviously concerned about the way your liver's so enlarged, so they're going to biopsy that too. Wow you're really being put through a barrage of tests, but I'm glad they're being so thorough, it's reassuring. Hopefully after all these tests they'll know everything they need to do for the absolute best treatment possible.

You're in good spirits, and that's fantastic. It must be very daunting and boring being stuck in there by yourself with no TV and no one to talk to.  I've given you that wee cellphone, and I'll call you every night, just to keep in touch (Sorry the only phone I had spare is baby pink...... but my other's one's bright pink.... I'll find you a case LOL). God knows I've done enough short trips to hospital with Cameron to know how dire it is when you're in a room by yourself, but I'm in all week next week for course so I'll be in to visit.

I admire your courage and the fight you're putting into this Dad, and you made me so proud when you said you're going to give this everything you've got because you want to see the grand kids grow up (even if I did nearly cry when you said it.... yeah I've been doing that a lot lately....)

I spoke to Jen on the phone once I got home and gave her your new cell phone number and filled her in on what's happening with you. I'm SO glad Mike and I made the big move down south, it's been so good to have such a great relationship with Jenny, and have her to support me, and hopefully I'm doing the same for her. And of course be here for you and Mum. Everything happens for a reason right? it was definitely the right move coming down here.

I'll be in on Friday (I have a Plunket society meeting.. yeah when exactly did I turn into Mum?? LOL) so I'll be in to visit then. I'll give  you a call before I come, I might be able to bring you a takeaway treat for tea :)

Love you Dad xoxo

Wednesday, February 9, 2011

Appointment

8 February 2011

Dear Dad,

It was good to see you this morning, Thank you for the car... it's perfect, as I knew it would be, you'd cleaned it, vacuumed it and made if perfect for me. It still scares the shit out of me that you've given me your trusty and much loved Toyota but I'll look past that and just thank you for the gift.

Thank you

So you had your oncologist appointment this morning. I wanted to go with you, but you know how stubborn you are. Fair enough I guess, it's up to you, and at least you weren't by yourself, Mum was there too. Make sure you ask her if you think you may have missed anything, OK? She's pretty onto it, and she will have a fairly good idea of what was said and what was meant. Or don't be afraid to ask me too OK? even if I don't know Liz won't mind translating Doctor speak for me, she's a good person, and a great friend :)

I gotta tell you, it was a bloody long day waiting to hear from you about your results. I'd tried to text Mum, but she was being frustrating and cryptic, and her being at work meant I couldn't even call her. I think Jenny had herself worked into a state too (you know what we're like... we feed off each other...). I guess I'm really lucky living in town (if that's what you can call Palmerston....) and have friends close enough to walk to and grab a cuppa with, but I think Jen spends a lot of time at her place by herself stressing. Make sure you keep us both in he loop OK?

I so so relieved to hear your voice when you called just after tea. It's a shock that they want you in so fast (tomorrow!) but I'm relieved they're getting onto it so fast, and your oncologist sounds very personable and thorough, just the sort of person I want looking after my Dad. So tomorrow you're in early for a CAT scan, lymph node - ectomy  (this was your word...) and a bone marrow biopsy. And you were told to bring things and expect to stay. I can't tell you how relieved I am that you're so positive and pro active about heading into the unknown. I know you must be shitting bricks about it, but the only way you're gonna win this war is by fighting it and getting the best help possible, and you're attitude will go a long way into winning this, keep it up!

I still had a big sooky last night after talking to you though. It's fucking terrifying, and being home alone so much doesn't help. It's exhausting trying to keep it all stuffed down and bottled up so I don't freak out the kids with constant sniffling or add any undue pressure to Mike when his exam's on Friday. Thank god for Emma, Liane and Kate for letting me bleat on via facebook. Especially Emma, she kindly lets me wah on almost every night. Mike should bloody send her flowers for taking the pressure off him.

I'm in town tomorrow anyway for some last minute things before I start course, so I'll pop into the hospital and see how you are. I would drop you off a cell phone but you know... the less said about your technology ability the better LOL

Keep strong Dad, and I'll see you tomorrow once the medical juggernaut has started

Love Cath xo

Monday, February 7, 2011

Face to Face

7 February 2011

Dear Dad,

It's taken me a while to write this, I've had a lot to process since we spent the weekend together.

I was hesitant to see you to be honest. I was scared you'd be thin, you'd look sick. You'd look like you were Dying, and I haven't been ready to face that.

When we arrived on Thursday night you just looked like you always to. Happy to see us, happy to see the kids. Chatty. Friendly. You and Mum showed me around the new Prado. You're pretty impressed with your new wheels. We spoke about me buying your faithful and well loved Toyota off you. But when it was time for everyone to sit down to a family BBQ you disappeared upstairs onto the phone. Now to be honest, you can talk the leg off an iron pot, but still, 2 1/2 hours on the phone? to a person you haven't been in contact with much over the years? really? Jen thinks you were avoiding us - having the whole family in one group was a bit too overwhelming when you're the reluctant centre of attention for all the wrong reasons. I'd almost be inclined to agree, but when Mum was showing me some sewing she's been doing she told me you've been having a lot of trouble eating, and the other night you'd vomited all down the hallway. Were you avoiding us as a group or scared you'd be sick and embarrass yourself? It's OK, for what ever reason, we're not offended. I just hope you don't feel you have to keep up appearances for our sakes.

Otherwise you seem pretty much the same. You looked a bit tired. and you were pretty crabby... but stress does that too, doesn't it?

So your oncologists appointment is tomorrow, and you're adamant you don't want me there. Fair enough. Just know I'm here when you DO want me though, won't you.

I'll always be here for you Dad, OK? The other day, when you took Cam for the ride in the car to get the paper? He told me about it Dad. I know he doesn't talk much, but he doesn't talk rubbish either. And he's very easy to understand when you REALLY listen to him. I cried and cried when we got home to Palmerston on Saturday and he told me
'Cam, Grandad ride in Grandad's Car. Grandad Cried.'
It broke my heart.

You HAVE to fight this, OK? Those Grandkids need you too much.

I'll see you tomorrow Dad, when you drop off the Toyota. I'm really grateful you thought of me rather than just taking bottom dollar for it at the dealers, and I'm trying not to think that you're settling up affairs, OK? I'm taking this car only on the basis that it's a generous offer from a Daddy to his daughter, nothing more, nothing less, and I'll take care of that car like no car I've ever owned before.

Love you Dad xo

Wednesday, February 2, 2011

Still Waiting

2 February 2011

Dear Dad,

Well, still no news. I even rung tonight to see how you're doing, because I'm SURE Mum's sick of me texting a million times a day. She'll be stressed enough without me harping on and on at her. I'm sorry I'm winding her up, but I'm having trouble just sitting back and waiting for something to happen. I want action now!

You sound fine. You chat about the dogs, drenching lambs, organising the muster, unblocking the septic tank (ewwwww! you better not die! Cos I don't want one of my last conversations with you to involve poo on the lawn! Dad! seriously! LOL) and you still sound well and happy.

I was glad you're so happy and open to talk about it though, and I'm glad you sound SO positive about treatment (if we EVER find out what exactly that entails), I was worried you were either
A - Shutting it out
B - Not comprehending the seriousness of the situation
or C - you'd already planned to not take the treatment and just take what comes when it comes.

I know you must be terrified about Chemo, it's the unknown isn't it? You saw Grandma go through it, and then Grandad died before Chemo could even be organised, and it must be horrifying when your only first hand experiences with Cancer have been fatal. I'm not sure what to tell you to reassure you. It's gonna be bloody hard Dad. It's going to be painful and long and you're going to feel like shit 99% of the time. And yep, you'll probably LOOK sick, and you even might lose all your dunny brush hair, but that's OK. You'll still be YOU and you'll be doing SOMETHING to fight this. And we'll be here to support you, 100% and 24/7, and all those other buzz word catch phrases you like to use LOL

I worry about Mum. I'm worried that she's shutting down. I KNOW she's terrified. You can tell. She went out today and bought a fortunes worth of Land Cruiser Prado, and we know mum ONLY spends money when she's terrified. We've seen it first hand - remember when Richard was in hospital and she bought that laptop? (Although I can't really comment... me and Jen spent every day down at the shops when Richard was in ICU.... and if I'm REALLY honest, I bought new shoes on Thursday after you were diagnosed... I was SO upset when I got home, and had a big melt down about 'happily' shopping while my Dad was so sick, but I honestly think I had gone onto auto pilot and carried out my last conscious decision as a coping mechanism....)

I'm gonna see you tomorrow anyway, when we all come out to stay before Liane and James' Wedding . I hope you're looking as well as you claim to be. I'm a wee but scared about seeing you in person, please don't be freaked out if I cry!

Love you heaps xo

Monday, January 31, 2011

Waiting

31 January 2011

Dear Dad,

Well we're still waiting huh.

After an exhausting, brutally traumatic weekend we're still waiting for news, still waiting to hear from Doctors. No one's told you anything. What a cruel trick, you'd think that the doctor who tore the arse out of our world on Thursday and gave us renewed hope on Friday could at least call you today and say 'Hi, how are you coping? Your test results aren't back yet but I'll call you the second they do...'

Is no news good news? Or do they figure we don't care about the minor details now and only want to hear from the specialist?

It's so fucking frustrating!

Speaking of frustrating... the queen of frustrating, Mike's mother, rang on Saturday morning and bullied me into buying flights north for Mike's fuck-wit of a brother's wedding. Fan - fucking - tastic. You know what she said??
'Oh well if it's ONLY Chemo then there's no reason you can't come up for the wedding'
'Why can't Jenny and your Mum be there for him'
Clearly Jenny and Mum will be sitting around on their princess arses... oh wait.... no they WON'T! It's not about what Mum and Jenny are doing! It's about what I want!
'I know you're Dad's sick, but we're family too'

You know what!?
Fuck you Colleen!
And fuck you Mike for blowing up at me when I told you I'd spent $600 to shut your Mother up. Fuck you all! And a I'm a fucking idiot too for letting my fragile emotional self get bullied by the manipulative bitch.

FUCK!!!

This would have never happened if I was still on the Prozac...

Oh, about that... yeah I didn't tell you cos I was ashamed. So shhh! OK? it makes me a braver better person (and I know you still love me... nutty nut pills or not.... I'm just not ready to say it out loud to you yet )

How's Mum doing? I worry about her. She's the bloody emotional ice queen isn't she? I think she (like the rest of us) are secretly terrified that the LYMPHOMA is the mis diagnosis, and it IS liver cancer after all.
I don't know how I'll cope if that's true.

I've been talking to Jen, and we think that I should come with you when you see the specialist, OK? Someone to ask the hard questions and someone else to hear what he's saying and make the mental notes for you. There's no doubt it'll be overwhelming so I want to be there to make sure we hear and understand EVERYTHING he tells you. Don't worry, I'm big enough and brave enough :) And Mum can come too, I just want to hear it first hand. No arguing, alright?

Alright Dad, I better get the house cleaned up and get to bed, between the monkeys they managed to reduce my snooze hours to about 2 last night... you always hoped I'd get kids like me that didn't sleep...

I'll talk to you soon

Love you xo